Journal of Education and Health Promotion

Establishing a minimum data set for Parkinson’s (PMDS) in Iran

Document Type : Original Article

Authors

. Ahmad Chitsaz
. Sima Ajami 1
. Maryam Varnaseri 2

1 Department of Health Information Technology and Management, School of Medical Management and Information Sciences, Isfahan University of Medical Sciences, Hezarjerib Avenue, Isfahan, Iran

2 Student in Health Information Technology, School of Medical Management and Information Sciences, Isfahan University of Medical Sciences, Hezarjerib Avenue, Isfahan, Iran

Abstract
BACKGROUND: The minimum data set (MDS) is one of the important steps in the development of
health care information systems. According to the Ministry of Health in Iran, a central and national
registry along with Parkinson’s MDS (PMDS) has not yet existed. So, this research was conducted
to establish a PMDS in Iran.
MATERIAL AND METHODS: This study was a descriptive–comparative method, which was done
in 2019–2021 in four phases: (1) determining data elements related to Parkinson’s disease in Iran
and selected countries; (2) extracting and categorizing the data elements; (3) making a PMDS
draft; (4) evaluating a draft by Delphi technique. The research population was the MDS in Australia,
Canada, the United States of America, and Iran. After extracting the data elements of Parkinson’s
disease from various resources, the primary draft PMDS was developed. Then, the research group
divided it into two categories (administrative and clinical). After that, it was sent to 50 healthcare
professionals for validation by the Delphi method.
RESULTS: Following the results of the two rounds of Delphi technique, Finally, PMDS was established
including a total of 223 data elements in two categories: administrative and clinical with 72 and 151,
respectively. Every category included 10 and 14 subcategories.
CONCLUSION: The first and the most important step for standardization of data collection nationally
is creating MDS. Due to the necessity of the existence of PMDS, a complete list of PMDS was
established for collecting data on Parkinson’s patients.

Keywords

Information systems
minimum data set
Parkinson
registry
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Journal of Education and Health Promotion
Volume 12, Issue 9
October 2022
Pages 1-5

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