Document Type : Original Article
Authors
- . Aliakbar Keykha 1
- . Monir Ramezani 2
- . Shahram Amini 3
- . Hossein Karimi Moonaghi 4
- . Azadeh Saki 5
1 Department of Medical‑Surgical Nursing, School of Nursing and Midwifery, Mashhad University of Medical Sciences, Mashhad, Iran
2 Nursing and Midwifery Care Research Center, Mashhad University of Medical Sciences, Mashhad, Iran, Department of Pediatric Nursing, School of Nursing and Midwifery, Mashhad University of Medical Sciences, Mashhad, Iran
3 Lung Research Center, Mashhad University of Medical Sciences, Mashhad, Iran Department of Anesthesiology and Critical Care, School of Medicine, Mashhad University of Medical Sciences, Mashhad, Iran
4 Department of Medical‑Surgical Nursing, School of Nursing and Midwifery, Mashhad University of Medical Sciences, Mashhad, Iran Nursing and Midwifery Care Research Center, Mashhad University of Medical Sciences, Mashhad, Iran Department of Medical Education, School of Medicine, Mashhad University of Medical Sciences, Mashhad, Iran
5 Department of Biostatistics, School of Health, Mashhad University of Medical Sciences, Mashhad, Iran
Abstract
BACKGROUND: Patients with a vegetative state (VS) are completely dependent on caregivers in
all physical aspects of their lives. Caring for such patients comes with a great deal of difficulty for
family caregivers. As a result, family caregivers must be fully trained and prepared for this role. The
present qualitative study was conducted to investigate the educational challenges faced by family
caregivers of VS patients for home care preparedness.
MATERIALS AND METHODS: The present qualitative study was conducted through the conventional
content analysis method from August 2020 to September 2021 in two provinces of Iran (Sistan and
Baluchestan Province; and Razavi Khorasan Province). Fourteen family caregivers of patients in a VS
were included in the study. Semi‑structured and in‑depth interviews were employed to collect data.
The Graneheim and Lundman method was utilized to conduct the data analysis using MAXQDA2020
software. Data collection continued until data saturation and the identification of main categories.
RESULTS: As indicated by the data analysis, three categories of “unmet educational needs,”
“confused caregiver,” and “searching for practical knowledge” which included 19 sub‑categories
described the experiences of family caregivers of patients in a VS concerning challenges they went
through in preparation for patient care at home. Participants’ experiences revealed that despite the
inadequacy of educations provided by health‑care providers on knowledge and skills required by
family caregivers, they were committed to caring for the patient and trying to acquire the required
knowledge.
CONCLUSION: Results indicated that inadequate education and the lack of family caregivers’
contribution to caring for the patient in the VS during their stay in the hospital impedes their acquisition
of adequate knowledge and skill to care for patients at home. Therefore, healthcare system
policymakers should be planning to eliminate the educational barriers faced by family caregivers
and expand the educational activities of hospitals’ homecare centers to provide educational support
of family caregivers after the patient’s discharge.
Keywords
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