3
Pediatric, Faculty of Medicine, Universiti Kebangsaan Malaysia, Kuala Lumpur, Malaysia
Abstract
INTRODUCTION: Educating a mother of a premature baby and providing a structured written educational information can enhance better understanding and practice. This article describes the development and implementation of a health educational package for preemie moms in the care of their premature baby after neonatal intensive care unit discharge. SUBJECTS AND METHODS: The package known as “Preemie Mom: A Guide for You” was designed based on Stufflebeam’s model and has four phases: (1) content evaluation from available sources of information, (2) input evaluation based on mothers’ need related to premature baby care, (3) process evaluation for package designing and content drafting, and (4) product evaluation to determine its feasibility. The contents were extracted and collated for validation by consulting various specialists in related fields. A final draft was drawn based on comments given by experts. Comments from the mothers were taken for formatting, visual appearance, and content flow for easy understanding and usage. RESULTS: All ten existing articles and eight relevant documents were gathered and critically appraised. The package was designed based on 11 main components related to the care of premature baby after discharge. The content validation was accepted at a minimum score of 0.85 for the item‑level content validity index analysis. Both experts and mothers were agreed that the package is easy to use and well accepted as a guide after discharge. The agreement rate by the mothers was at 93.33% and greater for the front page, writing style, structure, presentation, and motives of the package. CONCLUSIONS: “Preemie Mom: A Guide for You” is a validated health educational package and ready to be used to meet the needs of the mother for premature baby care at home.
Mok E, Leung SF. Nurses as providers of support for mothers of premature infants. J Clin Nurs 2006;15:726‑34. 2. Premji SS, Young M, Rogers C, Reilly S. Transitions in the early‑life of late preterm infants: Vulnerabilities and implications for postpartum care. J Perinat Neonatal Nurs 2012;26:57‑68. 3. Ingram J, Blair PS, Powell JE, Manns S, Burden H, Pontin D, et al. Preparing for home: A before‑and‑after study to investigate the effects of a neonatal discharge package aimed at increasing parental knowledge, understanding and confidence in caring for their preterm infant before and after discharge from hospital. Health Serv Deliv Res 2016;4:1‑114. 4. Lawn JE, Davidge R, Paul VK, von Xylander S, de Graft Johnson J, Costello A, et al. Born too soon: Care for the preterm baby. Reprod Health 2013;10 Suppl 1:S5. 5. World Health Organization. Health Education: Theoretical Concepts, Effective Strategies and Core Competencies: A foundation document to guide capacity development of health educators. Regional Office for the Eastern Mediterranean: World Health Organization; 2012. Available from: http:// www.who.int/iris/handle/10665/119953. [Last accessed on 2018 August 4]. 6. Whyte RK. Neonatal management and safe discharge of late and moderate preterm infants. Semin Fetal Neonatal Med 2012;17:153‑8. 7. SolerRS, Juvinyà CanalD, NoguerCB, PochCG, Brugada MotgeN, Del Mar Garcia Gil M. Continuity of care and monitoring pain after discharge: Patient perspective. J Adv Nurs 2010;66:40‑8. 8. Ministry of Health Malaysia. Family Health Development Division. Perinatal Care Manual: Section 5, Neonatal Care. 3rd ed. Malaysia: Ministry of Health Malaysia; 2019. 9. O’Brien K, Bracht M, Macdonell K, McBride T, Robson K, O’Leary L, et al. A pilot cohort analytic study of family integrated care in a Canadian neonatal intensive care unit. BMC Pregnancy Childbirth 2013;13 Suppl 1:S12. 10. Berns SD, Boyle MD, Popper B, Gooding JS, Preemie Health Coalition. Results of the premature birth national need‑gap study. J Perinatol 2007;27 Suppl 2:S38‑44. 11. Shelov SP, AltmannT, Remer SP, editors. Caring for Your Baby and Young Child: Birth to Age 5. 5th ed. USA: American Academy of Pediatrics; 2009. Available from: http://ebooks.aappublications. org/content/9781581104318/9781581104318. [Last accessed on 2018 August 20] 12. American Academy of Pediatrics Committee on Fetus and Newborn. Hospital discharge of the high‑risk neonate: Policy statement. Pediatrics 2008;122:1119‑26. 13. Obeidat HM, Bond EA, Callister LC. The parental experience of having an infant in the newborn intensive care unit. J Perinat Educ 2009;18:23‑9. 14. Kartini M, Hapsari ED, NismanW. The impact of health education on parenting self‑efficacy among early‑married women. GSTF J Nurs Health Care 2017;4:73‑8. 15. Forsythe PL, Maher R, Kirchick C, Bieda A. SAFE discharge for infants with high‑risk home environments. Adv Neonatal Care 2007;7:69‑75. 16. Namnabati M, Farzi S, Ajoodaniyan N. Care challenges of the neonatal intensive care unit. Iran J Nurs Res 2016;11:35‑42. 17. Ministry of Health Malaysia. Credentialing and Privileging GUIDELINES for nurses, Assistant Medical Officers and Allied Health Professionals. Malaysia: Ministry of Health Malaysia; 2018. 18. Ministry of Health Malaysia. Malaysian National Neonatal Registry and Clinical Research Centre. Malaysia: Ministry of Health Malaysia; 2017. 19. Stufflebeam DL. The 21st Century CIPP model: Origins, development and use. In: Alkin MC, editor. Evaluation roots: Tracing theorists’ views and influences. Thousand Oaks, CA: Sage Publications; 2004. p. 245‑66. 20. Zhang G, Zeller N, Griffith R, Metcalf D, Williams J, Shea C, et al. Using the context, input, process, and product evaluation model (CIPP) as a comprehensive framework to guide the planning, implementation, and assessment of service‑learning programs. J High Educ Outreach Engagem 2011;15:57‑84. 21. Whitehead D. Health promotion and health education: Advancing the concepts. J Adv Nurs 2004;47:311‑20. 22. O’Cathain A, Hoddinott P, Lewin S, Thomas KJ, Young B, Adamson J, et al. Maximising the impact of qualitative research in feasibility studies for randomised controlled trials: Guidance for researchers. Pilot Feasibility Stud 2015;1:32. 23. Hertzog MA. Considerations in determining sample size for pilot studies. Res Nurs Health 2008;31:180‑91. 24. Creswell JW. Research Design: Qualitative, Quantitative, and Mixed Methods Approaches. 4th ed. Los Angeles: SAGE Publications; 2013. 25. Orsmond GI, Cohn ES. The distinctive features of a feasibility Study: Objectives and guiding questions. OTJR (Thorofare N J) 2015;35:169‑77. 26. Oliveira SC, de Lopes MV, Fernandes AF. Development and validation of an educational booklet for healthy eating during pregnancy. Rev Lat Am Enferm 2014;22:611‑20. 27. Polit DF, Beck CT. The content validity index: Are you sure you know what’s being reported? Critique and recommendations. Res Nurs Health 2006;29:489‑97. 28. Zamanzadeh V, Ghahramanian A, Rassouli M, Abbaszadeh A, Alavi‑Majd H, Nikanfar AR. Design and implementation content validity study: Development of an instrument for measuring patient‑centered communication. J Caring Sci 2015;4:165‑78. 29. Madihie A, Mohd Noah S. An application of the sidek module development in rebt counseling intervention module design for orphans. Procedia Soc Behav 2013;84:1481‑91. 30. Ghani FA, Aris M. Development, validity and reliability of skilled module to control stress among the teachers. J Teknologi 2012;58:45‑50. 31. Amalia M, Sidek MN. An application of the sidek module development in rebt counseling intervention module design for orphans. Procedia Soc Behav Sci 2013;84:481‑1491. 32. Ciliska D, Thomas H, Buffett MK. An introduction to evidence‑informed public health and a compendium of critical appraisal tools for public health practice (Revised). National Collaborating Centre for Methods and Tools; 2012. Available from: www.nccmt.ca. [Last accessed on 2016 Jun 24]. 33. Elm E, Altman DG, Egger M, Pocock SJ, Gøtzsche PC, Vandenbroucke JP. The Strengthening the Reporting of Observational Studies in Epidemiology (STROBE) Statement: Guidelines for reporting observational studies. Policy and practice. Bull World Health Organisation 2007;85:867‑72. 34. World Health Organization. Born too soon: The global action report on preterm birth. In: Howson CP, editor. March of Dimes, PMNCH, Save the Children. Geneva: World Health Organization; 2012. 35. Chavasse J. Curriculum evaluation in nursing education: A review of the literature. J Adv Nurs 1994;19:1024‑31. 36. Shams B, Golshiri P, Najimi A. The evaluation of mothers’ participation project in children’s growth and development process: Using the CIPP evaluation model. J Educ Health Promot 2013;2:21. 37. Matthews JM, Hudson AM. Guidelines for evaluating parent training programs. Fam Relat 2001;50:77‑86. 38. Menghini KG. Designing and evaluating parent educational materials. Adv Neonatal Care 2005;5:273‑83. 39. Houts PS, Doak CC, Doak LG, Loscalzo MJ. The role of pictures in improving health communication: A review of research on attention, comprehension, recall, and adherence. Patient Educ Couns 2006;61:173‑90. 40. Brett J, Staniszewska S, Newburn M, Jones N, Taylor L. A systematic mapping review of effective interventions for communicating with, supporting and providing information to parents of preterm infants. BMJ Open 2011;1:e000023. 41. Pennell C, Whittingham K, Boyd R, Sanders M, Colditz P. Prematurity and parental self‑efficacy: The preterm parenting and self‑efficacy checklist. Infant Behav Dev 2012;35:678‑88. 42. Teles LM, Oliveira AS, Campos FC, Lima TM, Costa CC, Gomes LF, et al. Development and validating an educational booklet for childbirth companions. Rev Esc Enferm USP 2014;48:977‑84. 43. Arora C, Sinha B, Malhotra A, Ranjan P. Development and validation of health education tools and evaluation questionnaires for improving patient care in lifestyle related diseases. J Clin Diagn Res 2017;11:JE06‑9. 44. Asrofah JA, Rosana D, Supahar. Development of CIPP Model of evaluation instrument on the implementation of project assessment in science learning. Int J Environ Sci Educ 2017;12:1999‑2010. 45. Blencowe H, Cousens S, Chou D, Oestergaard M, Say L, Moller AB, et al. Born too soon: The global epidemiology of 15 million preterm births. Reprod Health 2013;10 Suppl 1:S2. 46. D’Agostino JA, Gerdes M, Hoffman C, Manning ML, Phalen A, Bernbaum J. Provider use of corrected age during health supervision visits for premature infants. J Pediatr Health Care 2013;27:172‑9. 47. Boykova M. Life after discharge: What parents of preterm infants say about their transition to home. Newborn and Infant Nurs Rev 2016;16 (2):58‑65. 48. Burnham N, Feeley N, Sherrard K. Parents’ perceptions regarding readiness for their infant’s discharge from the NICU. Neonatal Netw 2013;32:324‑34. 49. Cho JY, Lee J, Youn YA, Kim SJ, Kim SY, Sung IK. Parental concerns about their premature infants’ health after discharge from the neonatal intensive care unit: A questionnaire survey for anticipated guidance in a neonatal follow‑up clinic. Korean J Pediatr 2012;55:272‑9. 50. Phillips‑Pula L, Pickler R, McGrath JM, Brown LF, Dusing SC. Caring for a preterm infant at home. J Perinat Neonatal Nurs 2013;27:335‑44. 51. Smith VC, Hwang SS, Dukhovny D, Young S, Pursley DM. Neonatal intensive care unit discharge preparation, family readiness and infant outcomes: Connecting the dots. J Perinatol 2013;33:415‑21. 52. Ansari S, Abedi P, Hasanpoor S, Bani S. The effect of interventional program on breastfeeding self‑efficacy and duration of exclusive breastfeeding in pregnant women in Ahvaz, Iran. Int Sch Res Notices 2014;2014:510793. 53. Bonet M, Forcella E, Blondel B, Draper ES, Agostino R, Cuttini M, et al. Approaches to supporting lactation and breastfeeding for very preterm infants in the NICU: A qualitative study in three European regions. BMJ Open 2015;5:e006973. 54. Pereira NM, Verma RJ, Kabra NS. Postnatal lactational counseling and neonatal weight pattern. Indian Pediatr 2015;52:579‑82.
55. Weisband YL, Keim SA, Keder LM, Geraghty SR, Gallo MF. Early breast milk pumping intentions among postpartum women. Breastfeed Med 2017;12:28‑32. 56. Phillips RM, Goldstein M, Hougland K, Nandyal R, Pizzica A, Santa‑Donato A, et al. Multidisciplinary guidelines for the care of late preterm infants. J Perinatol 2013;33 Suppl 2:S5‑22. 57. Jefferies AL, Canadian Paediatric Society, Fetus and Newborn Committee. Going home: Facilitating discharge of the preterm infant. Paediatr Child Health 2014;19:31‑42. 58. Gardner SL. Parent education prior to discharge of the late preterm or term newborn. Nurse Currents 2011;5:1‑10. 59. Fowler AJ, Evans PW, Etchegaray JM, Ottenbacher A, Arnold C. Safe sleep practices and sudden infant death syndrome risk reduction: NICU and well‑baby nursery graduates. Clin Pediatr (Phila) 2013;52:1044‑53. 60. Craig JW, Glick C, Phillips R, Hall SL, Smith J, Browne J. Recommendations for involving the family in developmental care of the NICU baby. J Perinatol 2015;35 Suppl 1:S5‑8. 61. Troutman B, Moran TE, Arndt S, Johnson RF, Chmielewski M. Development of parenting self‑efficacy in mothers of infants with high negative emotionality. Infant Ment Health J 2012;33 (1):45‑54. 62. Wolke D, Bilgin A, Samara M. Systematic review and meta‑analysis: Fussing and crying durations and prevalence of colic in infants. J Pediatr 2017;185:55‑610000. 63. Khurana S, Rao BK, Lewis LE, Bhat R, Purkayastha J, Kamath A, et al. Development and validation of educational leaflet for caregivers of preterm infants. J Clin Diagn Res 2016;10:YC01‑4. 64. Altimier L, Phillips R. The neonatal integrative developmental care model: Advanced clinical applications of the seven core measures for neuroprotective family‑centered developmental care. Newborn Infant Nurs Rev 2016;16:230‑44.
Roshaya Zakaria,.. , Rosnah Sutan,.. and Rohana Jaafar,.. (2020). Developing and implementing a health educational package for preemie moms in the care of their baby after hospital discharge. Journal of Education and Health Promotion, 10(5), 1-10.
MLA
Roshaya Zakaria,.. , , Rosnah Sutan,.. , and Rohana Jaafar,.. . "Developing and implementing a health educational package for preemie moms in the care of their baby after hospital discharge", Journal of Education and Health Promotion, 10, 5, 2020, 1-10.
HARVARD
Roshaya Zakaria .., Rosnah Sutan .., Rohana Jaafar .. (2020). 'Developing and implementing a health educational package for preemie moms in the care of their baby after hospital discharge', Journal of Education and Health Promotion, 10(5), pp. 1-10.
CHICAGO
.. Roshaya Zakaria, .. Rosnah Sutan and .. Rohana Jaafar, "Developing and implementing a health educational package for preemie moms in the care of their baby after hospital discharge," Journal of Education and Health Promotion, 10 5 (2020): 1-10,
VANCOUVER
Roshaya Zakaria .., Rosnah Sutan .., Rohana Jaafar .. Developing and implementing a health educational package for preemie moms in the care of their baby after hospital discharge. J Educ Health Promot, 2020; 10(5): 1-10.