Document Type : Original Article


1 Ph.D. Candidate in Nursing

2 Departments of Nursing

3 Departments of Nursing Department of Nursing and Midwifery, Tehran Medical Sciences, Islamic Azad University

4 Departments of Nursing Iranian Research Center on Aging, University of Social Welfare and Rehabilitation Sciences

5 Department of Nursing, Medical Sciences Faculty, Tarbiat Modares University, Tehran, Iran

6 Departments of Biostatistics


INTRODUCTION: After the psychiatric revolution and implementation of deinstitutionalization policies,
caring for people with a mental health condition shifted from psychiatric hospitals to their families. In
this way, family caregivers were forced to take full responsibility for taking care of the patients that
lead to the occurrence of challenges for them. Only a few studies have investigated the caregiving
challenges of family caregivers in patients with schizophrenia.
AIM: This study aimed to gain a better understanding of caregiving burden in family caregivers of
patients with schizophrenia and its related factors.
MATERIALS AND METHODS: This qualitative study was performed based on 12 family caregivers
of schizophrenia patients visiting a psychiatric hospital in Tehran in 2018. Sampling was carried out
based on the purposive sampling method and was continued until data saturation. All interviews were
recorded, transcript, and imported into the MAXQDA software. Then, qualitative content analysis
was conducted based on Graneheim and Lundman’s five‑step method.
RESULTS: One theme, two main categories, and five subcategories were identified from the
continuous analysis and data comparison. The “Perceived objective burden” as theme included
two main categories: “Heavy involvement of caregivers” and “Challenges of the healthcare system”.
CONCLUSION: The results of this study indicate that the family caregivers of the patients with
schizophrenia encounter many problems related to multiple responsibilities in the caring process and
challenges in the provision of mental health‑care services. This finding could improve psychiatric and
mental health nurses’ knowledge and awareness about caregiving challenges in family caregiver of
patients with schizophrenia and related factors.


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