Document Type : Original Article
Authors
1 Department of Pediatric Hematology-Oncology, Children and Adolescent Health Research Center, Isfahan University of Medical Sciences
2 Department of Counselling, Faculty of Education and Psychology, Shahid Chamran University of Ahvaz, Ahvaz, Iran
3 Department of Medical Library and Information Sciences, Health Information Technology Research Center, Isfahan University of Medical Sciences, Isfahan, Iran
Abstract
INTRODUCTION: Cancer is the second cause of mortality among children. The aim of this study
is to identify the health information needs of families in childhood cancer as main source of support
and care for these children.
MATERIALS AND METHODS: The qualitative content analysis approach was used in this study.
The study population comprised parents of childhood cancer patients visiting Omid Hospital among
which 35 were selected using purposive sampling until data saturation was achieved. The study tool
was semi‑structured interview.
RESULTS: A total of 9 main themes and 24 subthemes were identified. The main themes included:
(1) information about cancer, (2) disease management and self‑care, (3) communication and
information interaction of medical team, (4) consultation services, (5) information sharing and
exchange, (6) access to health services, (7) hospital’s facilities and equipment, (8) access to social
and financial support, and (9) access to health information sources.
CONCLUSION: Health information needs of families in Isfahan are consistent in information needs
of families identified in other studies. Meeting this information needs through plans of health‑care
system can help these families in better control and treatment of their children’s condition.
Keywords
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