Document Type : Original Article
Authors
- . Sima Ajami
- . Mahdi Askarianzadeh 1
- . Sakineh Saghaeiannejad-Isfahani 2
- . Mojgan Mortazavi 3
- . Asghar Ehteshami 4
1 Department of Statistics and Computer in Health, Health Network Ardestan, Isfahan University of Medical Sciences, Ardestan
2 School of Medical Management and Information Sciences
3 Isfahan Kidney Diseases Research Center, Department of Nephrology, School of Medicine, Isfahan University of Medical Sciences, Isfahan, Iran
4 School of Medical Management and Information Sciences,
Abstract
Context: A disease registry is a database that includes information about people diagnosed
with specific types of diseases. The registry collects information that can be used for capturing,
managing, and organizing specific information for patients. Aims: The aim of this study was
to identify and compare the National Renal Disease Registry (NRDR) in selected countries
including the United States, United Kingdom, and Iran. Settings and Design: Retrieval of
data of the NRDR performed through scholars responsible in related agencies, including
the Ministry of Health and Medical Education, and Renal Disease charity, and data registries
in the United States, United Kingdom, and Iran. Materials and Methods: This research
was an applied and descriptive, comparative study. The study population consisted of
the National Renal Disease Registry of the selected countries including the United States,
United Kingdom, and Iran, from which data were collected using forms that were designed
according to the study objectives. Sources of data were researchers, scholars responsible
in related agencies, including the Ministry of Health and Medical Education, and Renal
Disease charity, data registries, articles, books, journals, databases, websites, and related
documents. Data were gathered through phone, e-mail, study, observation, and interview.
Statistical Analysis Used: The researchers collected data for each country based on
the study objectives and then put them in comparative tables. Data were analyzed by
descriptive, comparative, and theoretical methods. Results: There is no NRDR in Iran to
report the short- and long-term results of renal disease. Most of the renal transplant teams
report their own results as single-center
experiences. America and Britain have
pre-eminent national registry of renal
disease, compared to other countries.
Conclusions: The Iranian Society of
Nephrology should be actively involved to
create a National Renal Registry in Iran. The
registry should have representatives from
the universities, government, armed forces,
and private sectors. Researchers proposed
to design the Iran National Renal Registry
according to the UK Renal Disease Registry
model because of its prominent healthcare
system.
Keywords
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